Dear Rees ~

~ it's been just about five weeks for your hospitalization and I'm tired.

Tired of having no shakes to blend or eggs to fry or cookies to bake;

Tired of having no crap to side-step while bringing laundry into your room;

Tired of not chiding Go to bed at midnight (nevermind that I'm still up);

Tired of not sneaking into the den together to watch Law and Order while the younger kids rest;

Tired of not needing to stay up late to make sure you're home in one piece.


Please get well soon so I can get back to work.

Love, Mom


P.S. ~ the younger kids want to remind you of their canoe trips and 4-wheeler rides, too. Please and thankyouverymuch.

Five Things Homeschooling Has Not Been

 

I had ideas fourteen years ago. Even five years ago. Now I know better. Many of my romantic homeschooling ideas have been complete bombs, but rather than beat myself up, I congratulate myself on the nifty slacker replacements that have filled our home. Some plans that did not pan out:



#1. Field trips once a week. Too many kids; too much trouble. What do I do with the baby and the toddler while the big and middle kids are trying to watch a show or listen to other adults explain how the post office runs (Ha) or where the light emanates from in a painting? I've been reduced to offering cookies as a bribery thank you to friends for taking a kid or two of mine to various places. And I learned to love coffee table books with great photographs.


#2. Kids begging to learn on rabbit trails. Whenever I've said something like, "Oh, you're into that book about Lewis and Clark? Let me get more and you can do some projects/write some paragraphs..." they turned into an elementary version of the obstinate, spaghetti-legged toddler. So it's math, grammar, and reading, then they bolt for the door or the lego bucket. Or the den, to watch Baby Einstein with the baby, because most of them hold the position that any television is better than no television.

 

What a super old ad.

#3. Me learning advanced mathematics. I thought that if I began again with a five year old and homeschooled all the way through high school that I would effortlessly move right along with the kid into a grownup understanding of the logic and beauty of math. Hit a wall halfway through geometry. Twice. Brain freeze conceeded.

 

 

 #4. Science experiments with reports of hypotheses, observations, calculations, and conclusions. They never work like the books say they will and we all get grumpy. Also, my high schoolers (so far, two) are too busy to do them and prefer to read what someone else did. Our experiments happen by accident. Sort of. There was a terrible smell in my eleven year old daughter's closet that I yelled at her about because I thought it was from hidden dirty underthings. Turned out to be a baggie of flour and water she'd set aside to see how long it would take to mold that had gone rancid. It never molded but the smell? Interesting, huh?


This could be a science experiment...


 

#5. Love of classical music. I try. I put in a CD of our composer of the month every morning, which is great. But as soon as I try to tune in to the classical radio station in the van, there are many whines for dancing music ( I don't fight the country too hard, though).

 For a more uplifting entry of great things I've discovered, here's last year's end of the year post, when my firstborn graduated.

We Howells have spring fever bad ~
Love,
Allison

Clearly, we have a Book Problem

I am just about 44 years old and I like real books. I cannot get happy about e-readers, even though the technology piques my interest. Today I was shoving a pciture book into a space too small and actually had to stand up and kick it in. Too many books, I muttered. Because I enjoy blogging and Facebook (See, I'm not too much of an old fogey.), I decided to go around the house, snapping pictures of Where We Keep Books. You'll notice the general mess, which I left because I didn't want to pick up it's real life.

This is Clare's personal stash, because some books she wants to have very close to her.

This is in between the children's bedrooms upstairs: picture books, board books, huge coffee table books (We don't have a coffee table.).

This is in a kitchen cupboard. Cookbooks.

This is also in the kitchen and should be American books, our focus for school this year. I don't really know what's on the top.

This is the den windowsill above the futon where we sleep. Getting sleepy books, pulled from the shelves below. Some are probably child psychology books that Ken turned around because he didn't want Clare or the boys to notice the titles.

This is also in the den. There is no organization here at all.

Living room barrister with missing glass on the bottom 2 shelves and some of Ken's diorama soldiers. Mostly science-y.

In between 2 big windows in the living room. Poetry, popes, catechisms. Oh, and baby books on the bottom.

My favorite shelf. This was built by Ken and is organized! School books for four kids, math section, art supplies. I also use the top as a diaper changing table (although the basket of diapers seems to be empty at the taking of this picture. I'd better remedy that). If you look through all the clutter, you can just make out the previous two: barrister back on the left and the pretty poetry one straight ahead.



 

I would happily get rid of all our DVDs and VHS tapes for some sort of box with movies confined to computer blips (I guess we'd need a new television as well...) but books as computer blips gives me hives. Someday we'll have a room solely dedicated to books with wall-to-wall ORGANIZED shelves.  Until then, I buy more and sometimes have to kick them into place.

Maybe not, though ~

A room without books is like a body without a soul.
G.K. Chesterton

Love,
Allison

What's Going On

Flu. The doctor thinks that Rees caught the flu, which stirred up the pseudomonas colonized in his lungs. In these past ten days hospitalized, his pulmonary function and oxygen saturation dove down, while his blood sugar flew sky-high. So now he's home with a PICC, nighttime oxygen, and insulin; and I assume amateur nurse status once again. After sleeping for nine uninterrupted hours last night, he was almost back to his normal personality, making the burden of home healthcare completely worth it.

The response of his college professors has been first-rate: waiving penalties for his class cuts, and even rescheduling research papers and final examinations. Rees told me that he assumed (Yes, I did tell him about that word.) their apathy toward a bunch of freshman taking their classes to fulfil general ed requirements, but is pleasantly surprised and grateful for the willing care extended to one eighteen year old student.

Rees is cool with this.

 

This is me. Or is it "I?"

The serious consequence of this exacerbation is the emergence of diabetes. Many adults with CF develop a form of diabetes, making weight gain even more difficult. I guess there's no time for me to get soft in the kitchen; I've been studying and experimenting with nutrition for eighteen years and it's time to get back to work to find a new groove.

Rees has already been walking in our woods and plans a short jog tomorrow. Good old-fashioned exercise is one of the best ways to keep lungs and spirits clear and winter is breaking up in Alaska (I think I only yelled about the Mud twice.). He's hoping to get signed up for this drug study before his pulmonary function gets too high (weird problem).

A shout-out here for the nurses and RTs that take care of CFers. Quite a few have known Rees and all of us his whole life, helping me through those terrible beginning months and playing with my constant stream of new babies that weren't even patients. They've decorated his room for high school graduation, pointed local newsmen to his room for TV sketches, given us bags of second-hand clothing, and saved the best toys from the playroom for Howell kids.  I wonder if our bear-hug greetings break a non-fraternization rule? Ah well.

Rees doesn't play here anymore, but our smaller ones do. See the great mural on the right? The entire wing is painted like the Alaskan outdoors.

And our doctor? Whatever he makes, he's worth twice that. He comes every single day and answers every single question ~ no sighing or annoyed body language or haughty looks. If his day is full and we need him, he tells us to come after hours; when Rees wanted to get home with meds, Dr. R. showed up in his room and completed the discharge paperwork at 7pm; when Rees kept removing his oxygen cannula, he got a little snippy with him, rightfully so. Priceless.

So the flu got him, but he's on his way back up and summer is on its way back up and Addie's lungs are still clear, thanks to antibiotics and steroids. Things are looking up. Whew.

Alaskan kids in breakup.

I still put her in a snow suit because I like it. I mean, she likes it!


 

Happy day, happy spring, happy Howells,
Allison


P.S.~ Sometimes during goings-on like this, I don't want to be around normal people with normal kids. Nothing personal; it's me. Just so you know!

Happy or Not Happy

Eighteen year old dudes with CF that keep active by working part-time for a construction company make their mamas happy, happy, happy.

Eighteen year old dudes with CF that keep active by working part-time for a construction company and spend the day spraying insulation indoors and tell their mamas that their mask was black inside at the end of the day make their mamas . . . not happy, not happy, not happy.

Sure, he's cute and all, but insulation, boy?

I miss the little dude who would do whatever I said. Usually.

The building looks fantastic, though, and we're hoping his lungs still do. Saint Therese, pray for him please.

Still happy and proud,

Allison

Not Cystic Fibrosis

Do you get this baloney on your news feed like I do?

The message here is that if people would eat fresh, organic (wicked expensive) fruits and vegetables, that medication would be unnecessary; that people who turn to doctors and medicine and Big Macs are foolish and uninformed. I've taken an antagonistic approach and now comment "Not cystic fibrosis" to push back on the naivete.

In collecting the above silliness, I found these as well:

Because you see, children dying of hunger (according to this UN information, it's 60% ~ double the meme's 1/3) would have a chance to LIVE with McDonald's and grocery store food and medicines. Our kids with cystic fibrosis LIVE with fat and salt and calories and medication. Those with health problems and the dedicated doctors who treat us and our children know exactly what medicines and nutrition do and don't do.  How dare they assume doctors don't know or don't care? We are neither asleep nor uninformed - both of which I've been accused, for purchasing large french fries and allowing antibiotics. Those things are good for folks with CF. Good! And there is a reason that every fever or cough does not send 21st century parents into scarlet fever or whooping cough panic. Killing our children? Mass destruction? According to this study, obesity-related deaths topped 300,000 in 2011; HIV/AIDS killed 1.7 million; and malaria killed 655,000 (uncertain up to 900,000). So that false McD's meme merely feeds people's snobbishness and nutrition devotion that rivals any religion.

Yes, some doctors have lost their humanity and are only interested in expensive band aids for trusting patients.  Yes, eating chemicals all day, every day might result in health problems. And yes, memes are like bumper stickers: meant for a shock or a laugh or a reminder. So I will continue to type my little phrase as a shocking reminder that not all sickness can be cured with organic fruits and vegetables.  Not cystic fibrosis.

So glad to live in America, with plenty of food and medicine,
Allison


P.S. ~ I do believe in lots of unprocessed food, making my own flour, peanut butter, mayo, soups, veggie shakes, etc..  But we also have a limited budget and I find myself defending "the other side" after floods of unwanted advice and chastisement... 

{PHFR}

{PRETTY}

I love my table, mostly in white, to celebrate the election of Pope Francis! The bits of red are for the cardinals we prayed for.

{HAPPY}

She doesn't look very happy; it's me that's happy because she'd been playing by herself for a while.

{FUNNY}

So I take out an egg to fry for myself and notice it's smiling at me. Who does this? Do I not provide enough art supplies? You know I couldn't crack it. It's still in the frig . . .

{REAL}

I thought about cropping out the mess behind her, but it's Real, baby.

Like Mother, Like Daughter has many more friends to visit to brighten up your Thursday!

Love,

Allison