When I have to allow medical professionals to hurt my children without saying a word when I can sometimes visualize punching them and running away with my kid to a thatched cottage on the moor, something breaks inside and I wonder if I will ever truly trust anyone again. When I have to listen to other moms simper about how teething fever is the worst and I know I'm being mean when I can almost hear myself laughing at them, something breaks inside and I wonder if I will ever cultivate charity. When the ladies who lunch ignore my request for a few bucks toward our charity research walk but ask for funds to send their kids on mission trips and I'm certain I'll never speak to them again then get mad at myself when I do, something breaks inside and I wonder if I'm a petty jerk. When I stare at a hospital bill from the two days in nineteen years that he was in between insurance plans and know that the CEO who received a letter from Rees just passed it on to the billing office and I want to snarl at Mr. Big Bucks to just pay for it but have to be quiet because it's rude to talk money like that, something breaks inside and I wonder if I despise rich, powerful people. When I listen to the coughing and to the lab cultures and PFT results and want to die but can't, something breaks inside and I wonder how I will ever get to tomorrow.
Some parts get strong, to be sure, but other parts will never, ever heal.
I'm still trying, though, to be a trusting, charitable friend to all, even with my broken parts, who doesn't punch or shun or snarl or laugh meanly at anyone. But no one gets this craziness like CF Mamas, for all our disagreements about lakes and campfires and masks (!). They're special to me from afar. But if anyone reading this comes to Alaska, e-mail me so that we can visit for real, OK?
There is plenty of excellence that CF brings to a body, to a family, to a community, which I'm happy to herald, and often do. This is also part of it (well, for me at least) and I want you to know that when I recently saw a selfie of a vacationing couple and all of the "You deserve it" comments, I exclaimed to my husband, NO ONE DESERVES A VACATION LIKE A CF MAMA.
Broken, yes, but also ready for visits and vacations. And still beautiful.
Love and thanks to all my friends,