Thursday, January 20, 2011


I'm hoping you found this blog because your little one has been diagnosed with cystic fibrosis and you're searching for answers about the future. Fifteen years ago when we were told that our 9 month old had CF, the nurses sent other mothers into our room to talk and visit and listen to me cry and yell, but the new HIPAA rules prevent that now. So here I am. Please make a cup of tea and visit with me. Cry. Yell. Look at my pictures. It will be OK. It will be better than OK. Holland is gorgeous  (Have you read that allegory? It's in a page at the top under HELPFUL LINKS). More coming.


Added 9-6-2011 :

We are Catholic, Homeschoolers, Alaskans. We have a big family, some backyard farm animals, and a kid with cystic fibrosis (Maybe 2 ; we'll know after February when our 7th is born.) ~ you'll find it all here!

On the one year Blogiversary ~

* Rees, our son with cystic fibrosis, is now 17 years old and will graduate from high school in just four months! 

* We are awaiting the birth of our 7th child (due in late February), a second girl.

And now in June of 2012 ~

* Rees has graduated and will commute locally.

* Our baby girl, Adah Marie ("Addie") was born on Valentine's Day and does indeed have CF.

July 2012 ~

* An article about us from Life Site News!

March 7, 2014 ~

* I began asking the Servant of God Fulton Sheen to pray with me for a cure to CF.