Thursday, January 20, 2011


I'm hoping you found this blog because your little one has been diagnosed with cystic fibrosis and you're searching for answers about the future.  Fifteen years ago when we were told that our 9 month old had CF, the nurses sent other mothers into our room to talk and visit and listen to me cry and yell, but the new HIPAA rules prevent that now.  So.  Here I am.  Please make a cup of tea and visit with me.  Cry.  Yell.  Look at my pictures.  It will be OK.  It will be better than OK.  Holland is gorgeous  (Have you read that allegory?  It's in a page at the top under HELPFUL LINKS).  More coming.

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